I was having some reservations about my Copaxone injections, but as told by neurologist, it's really my last at-home therapy option. Shared Solutions, the 'support' group by the manufacturer, if you will, contacted me last Thursday & quizzed me about my experience thus far. The woman's comments to my responses were the kind I hate: repeated, statistical facts regarding pre-market study data. This lobs me in with everyone else as a number, removing my individual needs & just compares me with percentages. The bottom line was they felt I should stop the injections & speak with my doctor.
So, for 5 days, I didn't inject. The lumps & bruises on my legs & arms began to subside, J & I were both pleased to just say good night & go to bed. No anxious injections to be done or fussing with pain for half an hour. Of course, the doctor said take some Tylenol PM half an hour before the injection, the turn over & go to sleep.
Easier said than done.
Even with diphenhydramine taking the edge off, big fat teardrops rolled down my hot, flushing cheeks after the injection, as redness bloomed in a welt on my thigh. Just seeing my flesh bubble up in a near perfect circle is unnerving.
My emotions rise & my heart pounds. Even in my husband's arms for comfort, I cannot ignore the sound of my pulse thumping so hard in my neck I can hear my skin brush against the pillowcase. I don't know that I could have gotten this far without him beside me.
In this wash of anxiety, emotion, pain & rushing of pulse that I experience (almost nightly, mind you), my thoughts go to what's really going on. I'm upset that since I've come to a truce with my body, I'm breaking it somehow with these drugs. I have accepted-- maybe with the assistance of MS-- that this is me. My bones are soft, my head is hard, my nose is pointy & almost elfin. I don't tan, & I no longer try. I require a lot of sleep, rest, calm. I can't live on candy & toast, I have to nourish myself properly. I want my body to last, so I can inhabit it comfortably, to live my life with J. as long as I can.
Can I do this when I have to inject, ingest, compounds & chemicals & pills that have questionable efficacy over time?
I don't know what options I truly have. Well, that's not 100% true. I don't know what feasible options I have, or which ones I should exercise. I am curious about holistic medicine, but my one again, finances make that a little more difficult. I doubt insurance covers much of that. I bookmarked a page of a local facility that integrates holistic & 'traditional' medicine.
Is there something out there that will just allow me, not MAKE me, feel normal & pain free? Not groggy or drugged, nauseated or wired. It sounds like I want a lot. It really shouldn't be so much to ask to just want to feel good again, consistently.
Or is it?