Showing posts with label Tysabri. Show all posts
Showing posts with label Tysabri. Show all posts
10:10 PM

oh, hello auntumn.

i realize it gets 'real live cold' in other places, but deng it's cold right now.
maybe it just seems worse since i lose feeling in my hands on & off all day & they feel falsely colder than they really are. i always ask J. to check them to see if they're really cold, or it's just the MS effing with me.
although, our lovely wall of windows in the living room did little to retain any warmth in the place today. i moved the canary to the hallway, it was just too cold out there for him. no relaxing in the birdy bath today, dewd!




the trip to Ikea paid off amazingly with the new dresser. i'm so happy to see the heaps of clothes slowly disappearing. our bathroom is once again ours! not just a walk-in hamper. i daresay i'm almost enjoying doing the laundry, now that it will have a place to be put away! gasp!



especially as Thanksgiving creeps up, with our party of 8 people in attendance, i'll be tickled to not have the heaps crammed in our closet, straining against the door. oh, thank you Ikea. for once you have lived up to your reputation.

on the knitting front, the 2 skeins of deep green alpaca yarn i bought were MIA for 2 days. i started on a silky blend of who knows what that i bought at Fred Meyer in Portland last year to practice once more & the alpaca appeared in the box of stuff emptied out of the truck when i sold it. hooray! alpaca: found!



right off, i thrust it at J. & told him to pet the skein. see? it's sooo soft!
i yelped, hopefully explaining why i was pouting so much at it's absence.
he oohed at the touch of it. he humors me so well.

lastly, today was my 3rd Tysabri infusion. i was whimpering last night at the familiar, painful grip on my neck & shoulders that MS likes to have on me. truly the nicest people either work at or are getting chemo at this infusion center. they all wanted to see our wedding pics (which i loaded on my ipod last night just for them) & we parted with hugs & well wishes, since for 2 of them it was their last round of chemo. hopefully, all of our conditions remain on the upswing.


11:48 AM

it's dusty in here.

i know it.
i abandoned this blog for nearly a year!
so much has changed i can hardly type it all.
i'll just bring it up to present, & we'll go from there.

i now live in Oakland & i am engaged to an amazing boy that i have known all along.
i guess it took time & circumstance for my eyes to see him this way-- as the one person i want to spend my life with.

you're thinking wait wait wait! it's been barely a year & now you're moved in & engaged?! yes. in fact it's been 4 months since we got together, moved in together & decided to get married. the wedding is in October-- this October. aka: next month! i rarely know what i want so clearly. all we have done has felt so right.
i'm not afraid, in fact, i feel more sure of what i'm doing because he's by my side, come what may.





in other news, my MS is being a real bitch. i've gone through the battery of beta-interferon meds to no avail. more relapses & elevated liver enzymes leave me little choices left for therapies. all that's left is the scariest drugs, that are IV infused once a month. i'm typing this now with clumsy, numb fingers that are painfully tight feeling, a constant reminder that this is real. i only hope the Tysabri is my miracle drug.....i have no choices left.




oxox.